Supporting national actions to raise awareness on pancreatic cancer

  • Pancreatic cancer is one of the deadliest existing cancer, which is the reason there are only a few patient organizations in Europe. We need to foster the creation of organizations dedicated to this disease across Europe now.
  • There are major disparities between European countries regarding pancreatic cancer mortality. For instance mortality is one third higher in France than in the United Kingdom.1

The National Support Work Stream gathers members from national organizations and is helping them to get the most from the platform’ material and actions.

For 2018, we will continue raising awareness at national level and spreading the word in countries with strong presence.

Activities of the Work Stream


Throughout the year, members of this Work Stream will work on disseminating the translated Platform materials and replicating advocacy efforts at national level. They will gather via teleconference to share best practices and coordinate their actions to best use the resources provided by the Platform.

Quarterly Newsletter I (March 2017)
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Quarterly Newsletter III (October 2017)
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Quarterly Newsletter V (April 2018)
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Quarterly Newsletter II (July 2017)
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Quarterly Newsletter IV (January 2018)
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How to implement a Sound Advocacy Strategy?


Lydia Makaroff

Director of the European Cancer Patient Coalition (ECPC)



  1. European Cancer mortality predictions for men for the year 2014. Malvezzi et al (2014) Annal Oncology 25 (8). (last accessed on 2/03/2016)