Pancreatic Cancer Europe es una plataforma europea de múltiples partes interesadas que pretende reunir a expertos de toda Europa, incluidos académicos, médicos, políticos, grupos de pacientes, periodistas e industria con un interés común y la voluntad de mejorar la atención de pacientes con cáncer de páncreas.

 

 

Pancreatic Cancer Europe’s General Assembly Meeting – Barcelona, 4 July 2019

4 July 2019

The Annual General Meeting of Pancreatic Cancer Europe took place in Barcelona, Spain, at the occasion of the World Congress on Gastrointestinal Cancer. The general assembly meeting aimed to give an overview of the achievements in first half of 2019, and to discuss the strategic objectives and the actions identified in the long-term vision developed by the Board of PCE in April. The present members of the Platform were able to express their expectations for the Platform and explain how they will be able to further contribute to its development. Members will once again be called to participate to an Extraordinary Annual General Meeting in October. More details will be communicated soon to all PCE members. Thanks again for the successful AGM and looking forward to seeing all members next year for the 2020 AGM.

Pancreatic Cancer Advocacy Workshop award

4 July 2019

In April 2019 took place the Pancreatic Cancer Advocacy Workshop (PACAW) in Rome. Members of the Platform were invited to join the Heads of the “Awareness and Diagnosis” and “National Support” workstream, Ali Stunt and Antonella Cardone, to learn the know-how of designed advocacy strategies in their countries. To this occasion, Members were offered to create a strategy to compete for the Pancreatic Cancer Advocacy Workshop award. Two very successful proposals were submitted by our Scottish and Polish members, Pancreatic Cancer Scotland and EuropaColon Poland. EuropaColon Poland finally won the award, and the reward, a one-year support from the PCE Secretariat to the implementation of their national activities, based on mental health in cancer patients and adopting a psycho-oncological approach to cancer care. Congratulations to both groups for their submission, thank you to all the members who participated to the Workshop and see you next year for a third edition of the PACAW!

Short-Stay Scientific Award Winner Decided

4 July 2019

Thanks to a collaboration with the European Pancreatic Club, the Research Workstream of PCE was able to organise, this year for the first time, the creation of a Short-Stay Scientific Award (S3A) for Early-Career Investigators (ECI). The S3A was associated with a grant of 3000€ for the successful researcher to travel to a different country and stay for up to 3 months in a foreign research institution. The winner of this year is Marina Cihova, a Slovakian researcher at the Slovak Academy of Sciences, within the Cancer Research Institute, will go abroad and stay for a month in Madrid, Spain, at the Ramon y Cajal Health Research Institute. She will work to develop relevant pre-clinical study models of patient-derived pancreatic tumour organoids. This research project aims at improving diagnostic capacities in pancreatic cancer. The award, which is designed to foster collaboration and cooperation between research teams all over Europe, has been attributed to Marina Cihova during this year’s Annual General Meeting. Her stay will happen in September and will hopefully result in Marina’s success!

Participation to EPC Bergen and ESMO GI WCGIC

26 – 29 June 2019

Pancreatic Cancer Europe had the opportunity to hold a booth at the 51st European Pancreatic Club Meeting in Bergen, Norway, on June 26-29, and at the 21st World Congress on Gastrointestinal Cancer in Barcelona, Spain. During the Bergen EPC meeting, Nuria Malats, Sorin Barbu and Alfredo Carrato, Board members of the PCE association, each gave an insightful presentation. The beautiful city of Bergen was the perfect host for this meeting. Next year, the 52nd EPC Meeting will happen in Paris, and PCE of course looks forward to being represented again by the Secretariat and its Board members. PCE was also represented at ESMO GI. PCE had endorsed the event officially. Amid sponsors and other umbrella organisations such as Digestive Cancers Europe (DiCE), PCE was able to push forward the cause of pancreatic cancer. Two very successful meetings, both in terms of organisation and content, which led to PCE inviting many more passionate people to join the platform and contribute, at the European or national level, to the improvement of pancreatic cancer diagnosis, care and support to patient everywhere. We sincerely thank EPC and ESMO GI for allowing PCE to be able to advocate for pancreatic cancer at their Meetings.

Endorsement of ESMO GI 2019

Pancreatic Cancer Europe is proud to endorse ESMO World Congress on Gastrointestinal Cancer 2019. The ESMO World Congress on Gastrointestinal Cancer is the premier global event in the field – encompassing malignancies affecting every component of the gastrointestinal tract and aspects related to the care of patients with gastrointestinal cancer, including screening, diagnosis and the latest management options for common and uncommon tumours. ESMO GI will take place in Barcelona, Spain – from 3 to 6 July 2019. More information on their website www.worldgicancer.com.

Pancreatic Cancer Europe – Research

PCE Short-Term Scientific Stay Award

The PCE Board members, in particular Dr Nuria Malats, are glad to announce you the launch of the PCE short-term scientific stay award (ECI) on 2 April 2019!

The grant will allow Early Career Investigators to go to an institution or laboratory in another European country (from the EU) not only to foster collaboration, but also to learn a new technique or to take measurements using instruments and/or methods not available in their own institution/laboratory.

The applications for this grant are now opened until 31 May 2019. Please send your application to eci@pancreaticcancereurope.eu

The result of the grant will be unveiled during European Pancreas Club Congress in Bergen in June 2019.

Do not hesitate to write directly to the Secretariat for any further information regarding the grant (contact@pancreaticcancereurope.eu).

Manifiesto Europeo 2019 contra el Cáncer de Páncreas

Pancreatic Cancer Europe se fundó para llevar la lucha contra el cáncer de páncreas a la Unión Europea a través de una sola voz. Mediante el apoyo a la investigación, registros y contribuyendo a la sensibilización, tenemos un objetivo: reducir la tremenda mortalidad del cáncer de páncreas.

La Unión Europea debe tener un papel central en esta tarea. Para asegurar que la Unión Europea actúe, es necesario un compromiso amplio por parte de todas las instituciones y legisladores europeos.

En mayo de 2019 los ciudadanos europeos elegiremos a nuestros representantes en el Parlamento Europeo. Estas elecciones son un momento clave para las personas con cáncer de páncreas: el próximo Parlamento Europeo tiene la oportunidad de garantizar que la Unión Europea actúe.

Para facilitar el compromiso de todos los legisladores, Pancreatic Cancer Europe ha lanzado el Manifiesto Europeo 2019 contra el Cáncer de Páncreas. Al firmar este Manifiesto, los candidatos a las elecciones europeas están demostrando su implicación y compromiso para apoyar la lucha contra el cáncer de páncreas en la Unión Europea, a través de 8 acciones clave.

We invite all candidates to show their commitment and share the Pancreatic Cancer 2019 Elections Manifesto. Together we can tackle this deadly disease.

Aquí puedes consultar y descargar el Manifiesto Europeo 2019 contra el Cáncer de Páncreas.

Haz click aquí para ver quién ha firmado ya el Manifiesto Europeo 2019 contra el Cáncer de Páncreas.

Mapa del cáncer de páncreas ahora online

Después de varios meses de desarrollo, nos complace presentar el heatmap de PCE. Concebido como una herramienta que permita comparar la situación de los pacientes de cáncer de páncreas en cada país europeo, el heatmap proporciona información sobre el estado de la concienciación y sensibilización, política nacional, diagnóstico, investigación... A fin de poder ofrecer una herramienta lo más completa posible en contenido, estamos continuamente a la búsqueda de más datos; si desea añadir información correspondiente a su país, le rogamos se ponga en contacto con la Secretaría.

Visite el heatmap de PCE ›

¿Sabía que el cáncer de páncreas tiene la tasa de supervivencia más baja de todos los cánceres?

¡Ayúdenos a invertir la tendencia!

El cáncer de páncreas es actualmente la cuarta causa de muerte por cáncer en Europa. Si no se toma ninguna medida, se prevé que será segunda para 20203.

Presentado en julio de 2014, un Llamamiento a la Acción sobre el cáncer de páncreas por parte de los miembros del Parlamento Europeo ha sido el motor de las actividades de la plataforma. Desde su presentación, Pancreatic Cancer Europe ha estado desarrollando la Declaración de Cáncer de Páncreas a fin de garantizar un cambio real en las políticas europeas para los pacientes con cáncer de páncreas.

 

 

Los pacientes afectados de cáncer de páncreas pierden el 98% de su esperanza de vida saludable en el momento del diagnóstico5.

Hoy en día, el diagnóstico de cáncer de páncreas se asocia generalmente con una sentencia de muerte y pocos pacientes sobreviven un año después del diagnóstico, cuando un diagnóstico más temprano podría ayudar a reducir la mortalidad de la enfermedad. Si se diagnostica a tiempo, aumentan las posibilidades de supervivencia.

  1. Farthing, M, Roberts, S, Samuel D, Williams D, et al. Survey of digestive health across Europe: Final report. Part 1: The burden of gastrointestinal diseases and the organisation and delivery of gastroenterology services across Europe, United European Gastroenterology Journal, December 2014 vol. 2 no. 6 539-543
  2. Malvezzi M, Bertuccio P, Levi F, La Vecchia C, Negri E, et al. European cancer mortality predictions for the year 2013. Annals of Oncol. 2013; 24:792-800
  3. Pancreatic Cancer Action Network. The alarming rise of pancreatic cancer deaths in The United States: Why we need to stem the tide today, 2012. www.pancan.org/wp-content/uploads/2013/01/incidence_report_2012_executive_summary.pdf [Last accessed April 2014]
  4. Carrato et al, 2015. “A Systematic Review of the Burden of Pancreatic Cancer in Europe: Real-World Impact on Survival, Quality of Life and Costs.” DOI 10.1007/s12029-015-9724-1
  5. Carrato A, Falcone A, Ducreux, M, Valle, J, Parnaby A, Djazouli K, Alnwick-Allu K, Hutchings A, Palaska C, Parthenaki I. A systematic review of the burden of pancreatic cancer in Europe: Real-world impact on survival, quality-of-life, and costs. J Gastrointest Cancer 2015 Sep;46(3):201-11
Regístrese para recibir un boletín gratis