Pancreatic Cancer Europe est une plateforme réunissant l’ensemble des acteurs européens impliqués dans la lutte contre le cancer du pancréas : chercheurs, médecins, décideurs politiques, associations de patients, journalistes et industriels qui ont en commun la volonté d’améliorer les soins des patients atteints d’un cancer du pancréas.

 

 

Pancreatic Cancer Europe’s General Assembly Meeting – Barcelona, 4 July 2019

4 July 2019

The Annual General Meeting of Pancreatic Cancer Europe took place in Barcelona, Spain, at the occasion of the World Congress on Gastrointestinal Cancer. The general assembly meeting aimed to give an overview of the achievements in first half of 2019, and to discuss the strategic objectives and the actions identified in the long-term vision developed by the Board of PCE in April. The present members of the Platform were able to express their expectations for the Platform and explain how they will be able to further contribute to its development. Members will once again be called to participate to an Extraordinary Annual General Meeting in October. More details will be communicated soon to all PCE members. Thanks again for the successful AGM and looking forward to seeing all members next year for the 2020 AGM.

Pancreatic Cancer Advocacy Workshop award

4 July 2019

In April 2019 took place the Pancreatic Cancer Advocacy Workshop (PACAW) in Rome. Members of the Platform were invited to join the Heads of the “Awareness and Diagnosis” and “National Support” workstream, Ali Stunt and Antonella Cardone, to learn the know-how of designed advocacy strategies in their countries. To this occasion, Members were offered to create a strategy to compete for the Pancreatic Cancer Advocacy Workshop award. Two very successful proposals were submitted by our Scottish and Polish members, Pancreatic Cancer Scotland and EuropaColon Poland. EuropaColon Poland finally won the award, and the reward, a one-year support from the PCE Secretariat to the implementation of their national activities, based on mental health in cancer patients and adopting a psycho-oncological approach to cancer care. Congratulations to both groups for their submission, thank you to all the members who participated to the Workshop and see you next year for a third edition of the PACAW!

Short-Stay Scientific Award Winner Decided

4 July 2019

Thanks to a collaboration with the European Pancreatic Club, the Research Workstream of PCE was able to organise, this year for the first time, the creation of a Short-Stay Scientific Award (S3A) for Early-Career Investigators (ECI). The S3A was associated with a grant of 3000€ for the successful researcher to travel to a different country and stay for up to 3 months in a foreign research institution. The winner of this year is Marina Cihova, a Slovakian researcher at the Slovak Academy of Sciences, within the Cancer Research Institute, will go abroad and stay for a month in Madrid, Spain, at the Ramon y Cajal Health Research Institute. She will work to develop relevant pre-clinical study models of patient-derived pancreatic tumour organoids. This research project aims at improving diagnostic capacities in pancreatic cancer. The award, which is designed to foster collaboration and cooperation between research teams all over Europe, has been attributed to Marina Cihova during this year’s Annual General Meeting. Her stay will happen in September and will hopefully result in Marina’s success!

Participation to EPC Bergen and ESMO GI WCGIC

26 – 29 June 2019

Pancreatic Cancer Europe had the opportunity to hold a booth at the 51st European Pancreatic Club Meeting in Bergen, Norway, on June 26-29, and at the 21st World Congress on Gastrointestinal Cancer in Barcelona, Spain. During the Bergen EPC meeting, Nuria Malats, Sorin Barbu and Alfredo Carrato, Board members of the PCE association, each gave an insightful presentation. The beautiful city of Bergen was the perfect host for this meeting. Next year, the 52nd EPC Meeting will happen in Paris, and PCE of course looks forward to being represented again by the Secretariat and its Board members. PCE was also represented at ESMO GI. PCE had endorsed the event officially. Amid sponsors and other umbrella organisations such as Digestive Cancers Europe (DiCE), PCE was able to push forward the cause of pancreatic cancer. Two very successful meetings, both in terms of organisation and content, which led to PCE inviting many more passionate people to join the platform and contribute, at the European or national level, to the improvement of pancreatic cancer diagnosis, care and support to patient everywhere. We sincerely thank EPC and ESMO GI for allowing PCE to be able to advocate for pancreatic cancer at their Meetings.

Endorsement of ESMO GI 2019

Pancreatic Cancer Europe is proud to endorse ESMO World Congress on Gastrointestinal Cancer 2019. The ESMO World Congress on Gastrointestinal Cancer is the premier global event in the field – encompassing malignancies affecting every component of the gastrointestinal tract and aspects related to the care of patients with gastrointestinal cancer, including screening, diagnosis and the latest management options for common and uncommon tumours. ESMO GI will take place in Barcelona, Spain – from 3 to 6 July 2019. More information on their website www.worldgicancer.com.

Pancreatic Cancer Europe – Research

PCE Short-Term Scientific Stay Award

The PCE Board members, in particular Dr Nuria Malats, are glad to announce you the launch of the PCE short-term scientific stay award (ECI) on 2 April 2019!

The grant will allow Early Career Investigators to go to an institution or laboratory in another European country (from the EU) not only to foster collaboration, but also to learn a new technique or to take measurements using instruments and/or methods not available in their own institution/laboratory.

The applications for this grant are now opened until 31 May 2019. Please send your application to eci@pancreaticcancereurope.eu

The result of the grant will be unveiled during European Pancreas Club Congress in Bergen in June 2019.

Do not hesitate to write directly to the Secretariat for any further information regarding the grant (contact@pancreaticcancereurope.eu).

Manifeste sur le cancer du pancréas pour les élections de 2019

Pancreatic Cancer Europe a été fondé pour porter d’une seule voix le combat contre le cancer du pancréas à l’échelle de l’Union européenne. En favorisant la collaboration de tous pour la recherche, la création de registres, ainsi qu’en menant des actions de sensibilisation, nous avons un seul et unique objectif : réduire la mortalité du cancer du pancréas.

L’Union européenne doit avoir un rôle central dans cette mission. Pour assurer la pertinence de son action, l’implication de toutes les institutions européennes ainsi que de l’ensemble des décideurs publics est nécessaire.

En mai 2019 les électeurs européens vont choisir nos représentants au Parlement Européen. Ces élections vont être un moment charnière pour les patients atteint par le cancer du pancréas : le prochain Parlement Européen aura l’opportunité de s’assurer de l’action de l’Union Européenne contre le cancer du pancréas.

Pour permettre un engagement fort des futurs décideurs, Pancreatic Cancer Europe présente son Manifeste sur le cancer du pancréas pour les élections de 2019. En signant le Manifeste, les partis politiques ainsi que les candidats aux élections européennes de tous les pays membres montreront leur engagement à ce que l’Union Européenne agisse de manière appropriée contre le cancer du pancréas en mettant en place 8 actions-clés.

Vous pouvez lire et télécharger le Manifeste sur le cancer du pancréas pour les élections de 2019 ici.

Cliquez ici pour consulter la liste des signataires du Manifeste contre le cancer du pancréas.

La nouvelle carte interactive sur le cancer du pancréas est en ligne !

Après plusieurs mois de développement, nous sommes heureux de présenter la carte interactive PCE. Conçue et imagine comme un outil puissant capable de comparer la situation des patients souffrant du cancer du pancréas dans les différents pays européens, la carte interactive donne des informations sur la sensibilisation, les politiques nationales, le diagnostic, l’état de la recherche… Nous sommes toujours à la recherche de plus de données et d’informations pour l’enrichir. Si vous souhaitez contribuer pour votre pays, merci de contacter directement le Secrétariat général.

Visitez la carte interactive PCE ›

Saviez-vous que le cancer du pancréas a le taux de survie le plus bas de l’ensemble des cancers ?

Aidez-nous à renverser la tendance !

Le cancer du Pancréas est actuellement la 4ème cause de mortalité par cancer en Europe. Si aucune mesure n’est engagée, la pathologie deviendra la seconde cause de mortalité par cancer en 20203.

La plateforme a vu le jour suite au lancement d’un appel à l’action, en Juillet 2014 par un groupe de députés européens. Depuis sa création Pancreatic Cancer Europe s’est doté d’une Déclaration pour le cancer du pancréas, afin de réclamer de réelles améliorations dans les politiques européennes pour le cancer du pancréas.

Les patients atteints d’un cancer du pancréas perdent 98% de leurs chances de survie après leur diagnostic.

Aujourd’hui, le diagnostic d’un cancer du pancréas est généralement associé au décès à court terme. Et en effet, très peu de patients sont encore en vie un an seulement après le diagnostic. Un diagnostic plus précoce permet de réduire la mortalité de la maladie. Un diagnostic à temps augmente les chances de survie.

  1. Farthing, M, Roberts, S, Samuel D, Williams D, et al. Survey of digestive health across Europe: Final report. Part 1: The burden of gastrointestinal diseases and the organisation and delivery of gastroenterology services across Europe, United European Gastroenterology Journal, December 2014 vol. 2 no. 6 539-543
  2. Malvezzi M, Bertuccio P, Levi F, La Vecchia C, Negri E, et al. European cancer mortality predictions for the year 2013. Annals of Oncol. 2013; 24:792-800
  3. Pancreatic Cancer Action Network. The alarming rise of pancreatic cancer deaths in The United States: Why we need to stem the tide today, 2012. www.pancan.org/wp-content/uploads/2013/01/incidence_report_2012_executive_summary.pdf [Last accessed April 2014]
  4. Carrato et al, 2015. “A Systematic Review of the Burden of Pancreatic Cancer in Europe: Real-World Impact on Survival, Quality of Life and Costs.” DOI 10.1007/s12029-015-9724-1
  5. Carrato A, Falcone A, Ducreux, M, Valle, J, Parnaby A, Djazouli K, Alnwick-Allu K, Hutchings A, Palaska C, Parthenaki I. A systematic review of the burden of pancreatic cancer in Europe: Real-world impact on survival, quality-of-life, and costs. J Gastrointest Cancer 2015 Sep;46(3):201-11
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